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I’m Not Okay … Explained

08/31/22 | Pregnancy, Real Life, Twins

Orange Sunset from the Sky Garden

Today is a tough day, but nearly every day is a tough day.  In some ways May 1st feels like yesterday.  The pain feels like it was yesterday and actually is worse than it was at the beginning of May because the shock has started to wear off which means the hurt is deepening.  And in some small ways it feels like it did happen months ago – some of the minor details are beginning to blur and despite cataloging much of my life here on the blog I do not actually write a diary.  Thus, I am glad a few days after they were born I started writing a full account of what happened and then read it to Mark to fill in any blanks.  The details I are still sharp enough I have not had to read that yet to remind myself but in the future I am sure I will be thankful I at least have it, if I want to.

People keep asking me how I am and I have come to dread this question – “great” “good” or “okay” are some of the standard answers but when you say “not okay” it tends to raise eyebrows and make people uncomfortable.  In speaking very candidly with my brother a few weeks ago he said “I don’t know what that means” and that is fair.  When I say this I mean I am not normal and I am not in a good state either physically and mentally.  I usually say that I am not okay when attempting to answer the question “how are you?” I understand that this makes people feel uncomfortable but believe me when I say there is nothing you can do.  My therapist says this may make people feel helpless but there really is nothing – so don’t feel like you are missing something.

Also, I am supposed to be sad.  I am not supposed to be okay.  While there is no right way to grieve it takes most people at least six months to grieve properly. And six months is a bare minimum, it may take six years.   I have learned the recommended way to grieve is through being sad, experiencing the sadness, processing the grief, and going from there.  It’s a horrible feeling and it seems like directionless advice especially for someone like me who likes to plan ahead and fix things but this is the medical advice and guidance I am trying to follow.
Over the past four months people have said things that have made me quite upset but most of the time I have not reacted.  It has been a true struggle to articulate both why it hurt and what they should have said instead.  I have been giving this a great deal of thought and wanted to share things that made me upset and things that are okay, for me personally, in terms of conversations.  Basically, if I want to talk, please just listen and avoid judgment. There is no timeline for grief and it is helpful if you avoid expectations of when I will feel better or stop feeling the crushing pain of this loss. For me the most helpful thing people is to show empathy and to acknowledge the significance of our loss without minimizing it in any way.

Things that are okay to say:

  • I don’t know how you feel, but let me know I can help in any way.
  • I’m here for you.
  • I won’t ask you about it but you can always call me if you want to chat.

Things I would ask you to please not say (and this also includes anything that tries to justify the loss or to tell me how to feel):

  • Get over it.
  • You need to move on.
  • Everything happens for a reason / there must be a reason this happened.
  • It was meant to be.
  • At least … [anything]
    • … you are okay
    • … the funeral is over
    • … you didn’t have to make an end of life decision
    • … you don’t live in the Ukraine
  • Everything happens for a reason
  • You are doing so well / you don’t look like you’re grieving.
  • (Any talk of future children)

And by all means that is not an exhaustive list, but just a rolling list of real life examples.  Someone recently sent a nice ping via work chat “I’m sure you have millions of people to talk to but if you ever want a chat, or a distraction, or whatever, just drop me a line.”   To all those near and far, thank you for being here during this unthinkable time and for something that has no end date – I appreciate it more than you know.

Lastly, I mentioned today is a tough day and it honestly might be one of the worst.  August 31st was my due date.  And today there will be no baby girls in my arms.  And that is soul crushing.

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Comments

  1. Tracy says

    September 7, 2022 at 1:43 pm

    So good of you to let people know how you are feeling and what is ok and not ok to say to protect yourself.

    Very powerful words and all your readers are sending you much love and support.

  2. TAMMY says

    September 1, 2022 at 12:07 pm

    For losing twins there is no time frame on when someone is over the grieving process. Especially something like this. For me I would need at least a year. This is a traumatic horrible experience that nobody should feel. You should be celebrating the birth of twins right now instead of this. As for terrible insensitive things listed those are fake toxic people that you don’t need in your and Mark’s life. I feel for the both you.

  3. Cindy says

    September 1, 2022 at 6:48 am

    Wow, so powerful and well written and very helpful. It is always so hard to know what to say and I will be forwarding this to a few of my friends who have sadly experiended similar losses.

    Everyone does grieve differently and I am so proud of you for doing it your way. It is important to grieve.

    Sending you love and prayers.

Hi, I am Kelly and welcome to Sparkles and Shoes, a fashion, travel, and lifestyle blog.  I am a New York City girl at heart but I moved to London in the Spring of 2018!

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